Living with Gastroparesis ( @Living with Gastroparesis
) has his #worry
The DREADED #HOLIDAYS are HERE!
I used to LOVE #Thanksgiving AND #Christmas. Now? I’m having a #panicattack just thinking of all the things I do to hide my disease, if I’m unable to do so and I’m unwell, then as a family rule, no one goes. (They used to go to every holiday without me. I insisted but it causes more #stress, #hurt #feelings and #confusion for the kids to do that anymore. We’re a #team. #Family sticks with Family.) But, when those times happen? I can’t go and I let EVERYONE down? They don’t SEE the #PRESSURE that’s put upon ourselves just to make it past the meal....more #anxiety and feeling of #impendingdoom.
I used to LOVE the smell of a turkey baking. Now, it makes me want to #upchuck just thinking about it. This year, I’m trying #facemasks to see if it helps...#moreanxiety and #worry.
When I eat? 70 percent of the time I REGRET IT bc I feel so much #pain. This is NOT manageable around others. So, do I just not eat? #hangry
What if I pass out? I haven’t eaten in days. #moreanxiety
Then, we hear the “unkind things” said about us by those who don’t understand and are ignorant about #gastroparesis. It hurts me deeply. Then, I get mad. But, I bury it down so there’s rage inside me, I’ve never experienced before. I. Do. Not. Understand. People. Who. Can’t. Put. Themselves. In. Someone’s. Else’s. Shoes. #Ignorance isn’t an excuse. Have someone in YOUR family with #GP? Be #KIND. You have NO IDEA what our life is like. Don’t pretend you do and think you could do better. You stay home when you have the #stomachflu.
I can’t EVER tell if it’s the #flu or GP so I go about my day BC that’s MY “NEW NORMAL”. You either adjust or you have no #qualiftyoflife at all. Life is hard as HELL with GP. I know I didn’t fully “get it” until it happened to me so, trust me I KNOW you don’t understand my #invisiblechronicillness.
Instead? Try to be understanding instead of #gossiping and tearing down another person’s character. If you can’t? You should SAY NOTHING bc once you do FINALLY “GET IT”? You’ll feel like an ass. (Or, I hope so....) The #exhaustion. When are my “batteries” gonna wear out and more worry me. But GP you won’t win! 💪💚💛